Showing posts with label disability rep. Show all posts
Showing posts with label disability rep. Show all posts

Thursday, June 19, 2025

Interview: Picture Book Author Joëlle Retener on a Stonewall Honor, Agents, Disability, and Activism

White background, Blue script heading with dragonfly image: "Joëlle Retener: Author, Activist, Dreamer" Headshot of smiling person with brown skin, black braids to one side, glasses and smile, the covers of the picture books "Marley's Pride" and "USA"

🌈 Happy Pride! Charlotte Sullivan Wild here, and I’m thrilled to share this interview with picture book author Joëlle Retener. They are about to receive a Stonewall Honor for their picture book Marley's Pride (illus. by DeAnn Wiley) at the American Library Association conference next week.

💜 Last year, one of my happiest surprises was when Joëlle asked to trade work, and we became fast friends. We connected through the Facebook group Disabled Kidlit Writers, hosted by Lillie Owens Lainoff (another star!). In addition to both being LGBTQ+ picture book authors, we have the same chronic illness. ME/CFS blocks a body’s ability to produce energy correctly or recover from exertion (physical, mental, emotional, and sensory). Finding a creative friend who doesn’t mind recording video messages while lying in a dark room is a gift! Now, I'd like to share the gift of Joëlle's interview!

📚 → Learn more about Joëlle’s recent and upcoming books.
 
✏️ My comments are bolded. Joëlle’s are in regular text. This interview has been edited for length and clarity. Let’s get started!


STONEWALL HONOR

Image from "Marley's Pride": colorful scene at Pride celebration with various Pride flags, diverse people and Marley's grandparent holding them on their shoulders. They are both smiling, with brown skin and black hair. Zaza has gray facial hair, Marley is wearing headphones.
(c) 2024 DeAnn Wiley, from "Marley's Pride," Barefoot Books, used with permission

Joëlle, CONGRATS on your ALA Stonewall Honor for Marley’s Pride! This is a beautiful story of how a queer Black grandparent supports their queer grandchild, by helping them navigate Pride with sensory sensitivities. The heart of this book is that Pride is about welcoming and supporting everyone.

What was it like to get “the call” about the Stonewall Honor and to have your work honored?

I was in complete disbelief. I broke down in tears and screeches of excitement! It was such an honor to be recognized. You and I have talked about this before, Charlotte… [historically], queer literature that’s recognized tends to be whitewashed and focused on the experiences of white gay men. The fact that my book that centers the journey of two trans-nonbinary Black individuals was recognized is a testament to the evolution of queer children’s literature. This win sends a message to people who share those intersecting identities that you’re seen and we value you. Your voices and your stories are worthy of being shared, are worthy of being uplifted. It was a powerful experience to know that something that I created is providing representation for my community in a way that has not been done, or at least not consistently.

It gives me hope that stories like mine, that children like me, that families like mine, can see themselves represented in books. Not only books about trans and nonbinary lives, but books that go beyond the normal tropes of coming out, [that] are centered in queer joy, and rooted in community, I think that’s a really big deal. Especially at a time when there is so much struggle within our community. To be reminded that the radical joy that comes with living authentically and being in community with others lives on is a gift. For my book to be shared broadly as a symbol of all that our community is, is humbling. I’m very grateful and hopeful that it will uplift folks who need the daily reminder that we are not alone. Joy is inherently part of our human experience no matter how we identify.


AGENTS!

Logo and heading for "Bookends & Bookends Jr. Literary Agency; James McGowan, Senior Literary Agent (he/him/his)" On white background headshot of James smiling with light skin and short dark hair in front of a bookcase

Both of us have had the hard experience of leaving our first agents. It sounds like you have landed in the right place with James McGowan at Bookends Literary Agency! (For those querying agents, James is focused on building his adult list right now.) What is that relationship like? I know that on my recent search I needed to figure out my own priorities…

I’m so grateful to be working with him! I feel like I have this superstar in my corner! James is really responsive. He has a great eye for how to strengthen my manuscripts in order to make them sellable. He is patient with all of my many, many questions. He is kind and funny and so snarky, and that’s what I love most about him! I can bring my full authentic self to the table when I’m working with him. While I recognize, yes, it’s a professional relationship, I can let my very short hair down when I’m with James. I feel so comfortable.

Most importantly, I genuinely believe that James loves my manuscripts. As someone who has historically been insecure about their writing, having an agent like James by my side has helped me to really fully perceive my work for what it is. It’s been such a magical experience. I couldn’t imagine working with anybody else.

The search for the right agent can be so tricky. It’s encouraging to know that this is possible with time and patience!


WRITING WHILE DISABLED


The logo for Disabled Kidlit Writers with a white background and swoops of colors, and quill/ feather with the colors of the disability flag
The new logo for the Disabled Kidlit Writers group on Facebook, where Joëlle and I met.

How does disability influence the way you write and what you write?

I have a dynamic chronic illness [meaning, the severity fluctuates], so I live my life in seasons, from flare to flare. As a result, my writing is also seasonal. [Flares] impact me both physically and mentally since my disability affects my cognitive function. The typical advice is to write, write, write, as much as you can! You must be a prolific writer! The reality is that I can’t be. I can only write based on how my chronic illness is behaving.

I relate! When I became ill, the focus shifted from “how much” I work to “how to” work around physical and cognitive limits. Whether one is disabled or caregiving or working long hours, working harder isn’t always an option.

Often times, I’m not writing, but I’m reading, listening to audio books, which are incredible when you don’t have the physical capacity to read. During these periods of “dormancy” I focus on documenting the ideas that bubble up. My creativity is usually dying to come through and this is an easy way to feed it even if I’m not able to fully create stories in those moments. (Yes!)

My disability has also allowed me to explore different ways to write. When sitting up is difficult, I’ll write from [bed]. (Ditto!) Sometimes, physical typing or looking at my computer screen isn’t accessible to me. I use talk-to-text apps instead and leave myself voice memos to think through ideas or concepts. I save them like sticky [notes] to circle back when I have the space to do so.

Does disability affect what you write?

My disability has made me even more determined and passionate about writing inclusive stories. It’s so important for children, but also [for] the parents who are reading, to see themselves in books. I want to remind readers that they belong. Black people belong. Black trans - Black Queer people belong, and disabled people belong, especially in spaces that have been historically inaccessible to those communities, such as nature/the outdoors. We exist in this world, right? To assume that disabled people aren’t all around us is just unrealistic. Which is why I make a concerted effort to work with my editors and illustrators to have disabled people represented. [I try] to ensure that that representation is present in whatever I touch.


FINDING CREATIVE COMMUNITY WHILE DISABLED

For me, isolation has been the hardest part of becoming chronically ill – worse than the illness itself, which is why your friendship has been such a joy, Joëlle! (I wrote about this for SCBWI in 2023: “Cures for Loneliness: Writing and Illustrating Disability.”)

Blog post heading and image: Nighttime window with a reflection/ silhouette of a figure with hair in a loose bun, lamp and dressers from a living room, looking out on fading sunset, silhouette of trees and a barn. The moon looks like a small jewel or tear on the figure’s face.


How is creative community different when you live with disabilities? What do you wish people knew?

Thank you for this question! I don’t often get opportunities to talk about my disability and how it impacts me as a creative. Shedding a light on it could help other spoonie creatives like me to feel a little bit less alone. 

(SIDEBAR: Christine Miserandino coined spoon theory as a way to measure energy with metaphorical “spoons.” People with disabilities may have significantly fewer or a fluctuating number of daily “spoons” compared to non-disabled people. “Spoonies” are people who have to pace their energy very differently than non-disabled people. Now, back to Joëlle!)


Image from a video of a woman with light skin smiling in a white shirt with longish dark hair, holding paper and speaking. Heading: "The Spoon Theory as written by and spoken by Christine Miserandino"


I really struggle with connecting with the kidlit community. There are so many platforms where we can engage. While I’m really grateful for those digital spaces, keeping up feels impossible. Being on apps like Bluesky and Discord feels like stepping into a really loud room and you have a sensory sensitivity. Like, there’s constant noise coming at [me], and I am incapable of sift[ing] through it.

Sometimes, when I’m having good body days and my mind isn’t as foggy, I try to jump on. I want to be around my people. I want to share the ups and downs that are part and parcel of the publishing business. But it’s difficult. And my enthusiasm doesn’t last long. It can be really isolating not to be able to connect with other creatives in those spaces. It’s often a choice between [that] and showing up in the real world for myself or my family. That means I don’t get [many] opportunities to connect with other creatives.

That’s so hard.

One of the few gifts of the pandemic was that more events are now online, which means that homebound or disabled people can at least watch events when in-person or live attendance is impossible. This also reduces travel costs, another barrier. I appreciate when webinars are archived for a month, so I can watch them in parts if I can’t concentrate for 1-2 hours or if it’s a bad health season. But for those able to attend some events, there are still barriers, right?

In person get-togethers are so difficult. They usually require travel, which looks like me schlepping my entire family to these events. Then there’s naturally lots and lots of socializing which takes weeks for me to recover from on the back end. I don’t think most people understand how taxing it can be for people [with] chronic condition[s] to simply leave their homes let alone all the planning and prepping that comes with attending larger social gatherings. It is a struggle and it can be very lonely.


With a grassy background, image of Joëlle looking at us with a serious face, with brown skin and short black hair, aqua glasses and ear rings, and an open colorful dog-patterned shirt with a white t-shirt.


I’m really grateful for the writing friends who I connect with one-on-one, via Marco Polo (a free video messaging app) or voice memos on texts.

Ultimately, it is very much about trying to find accommodations and exploring different avenues for connection.

It’s my hope that this blog post will help able kidlit creatives to better understand the spoonie struggle. Then perhaps we could find ways to reduce the emotional and mental labor that’s typically shouldered by their chronically ill counterparts when seeking out community.

Thank you for sharing your experiences, friend.



WHAT ARE YOU READING?

Last, what is something you’ve read that is lighting you up?


Book cover has bars of different colors radiating out from a small black circle at the center. Book title is below


Micro Activism: How You Can Make a Difference in the World (Without a Bullhorn)
Small Actions = Big Results
By Omkari L. Williams
Forward by Layla F. Saad


Gosh, this book really stuck with me! It's about how to make activism accessible to everyone. Williams talks about the perception [of] activist[s] and what [they] look like. More often than not, activism is perceived as being at the front lines with a bullhorn, on stage. The reality is that activism is more all-encompassing, and [we] need to see it from a holistic perspective. Activism is accessible to everyone, which to me is an incredible realization given my health issues.

Yes! Recently, a disabled author friend was processing with me how much she wanted to march at protests, but she is unable to do so physically. She did feel proud that her son marched. Raising him is part of her radical work. So are her stories and donations. We can show up in our own ways.

[In] the forward, Saad [says] that for the longest time, she did not consider herself an activist because she did not fit the quintessential image of an activist. But as Williams notes, activism is a verb. It’s a verb that describes actions that you take in order to move forward the greater good of humanity.

I’ve had to really rethink how I show up in this world, specifically [with] my social justice work. This book has allowed me to own it, and to embrace it. It has allowed me to recognize how my storytelling is one hundred percent activism! Yes, I have said it! I’ve said it!

I agree!

My disability has forced me to let go of a lot of things. [But this] book allowed me to see that maybe it’s not a releasing of the social justice part of my life, [which] is so fundamental to who I am. Perhaps it’s a reframing of how I approach my activism, and an opportunity to find new ways to lean into it.

I love that! Thank you for sharing your heart and experiences, Joëlle!

If you’re headed to ALA, look for Joëlle and their beautiful book Marley’s Pride! Check out what's next from Joëlle!




Soft rainbow background, book announcement that Regan Winter at Disney-Hyperion has purchased Madina's Big, Fabulous Win by Joëlle Retener, illustrated by Kennedy Lorraine


Wishing you all joy and community for your journey!

💜

In case you missed them, here are my previous posts for June:

“Pointless Joy! Returning to the Heart in our Art”

“My Process, My Nightmare!”

💜

Joëlle Retener is the author of Marley’s Pride a Stonewall Honor book, which received starred reviews from Kirkus, Publisher’s Weekly, and Booklist, and OUR WORLD: USA. Their forthcoming books include MADINA’S BIG, FABULOUS, WIN and its sequel (Disney Hyperion ’26), and BELLY GROWLS (Henry Holt 27′). As a Black Kreyol, disabled, nonbinary creative, Joëlle believes that art is a vehicle to rewrite and reimagine outdated narratives about historically marginalized communities. Joëlle is a proud graduate of Spelman College and American University. They are represented by James McGowan at Bookends Literary Agency. Learn more: www.joelleretener.com

Charlotte Sullivan Wild is the author of several picture books. Love, Violet (illus. Charlene Chua) is a Stonewall Book Award winner, Charlotte Huck Honor Book, and Lambda Literary Award Finalist. The Amazing Idea of You (illus. Mary Lundquist) is a lyrical celebration of the potential in living things, especially in every child. She has taught language arts, literature and writing, worked as a bookseller, and volunteered as the SCBWI RA for Southwest Texas. She is represented by Analía Cabello at Andrea Brown Literary Agency. Learn more: www.CharlotteSWild.com

Thursday, April 24, 2025

Are Disability Stories in Kid Lit (Finally) Having a Moment?

Looking back at the books I read last year and loved, I was pleasantly surprised to find so much disability representation. True, I do tend to seek out these books, but it definitely seemed like there were a lot available to reach for. The titles that blew me away were also predominantly written by authors writing, at least in part, from their own lived experience. Sweet!


CURSED book cover.
As recently as six years ago, when my own based-on-lived-experience debut YA Cursed came out, there were not as many disability-themed kid lit titles to choose from. The titles that were available were largely written by and featuring cis/het white folks and often weren’t written by authors who identify as disabled or neurodivergent. Both of those statistics are beginning to change—but very slowly. Still, it’s great to see progress happening.

Interested in reading more #DisLit? Here’s bit about the books I’ve read recently and recommend to get you started:


Published in 2024

  • The five book covers mentioned in the text on a dark green background
    2024 was a BANNER year for disability rep in kid lit!
    Joined at the Joints by Marissa Eller. A swoony romance featuring a main character with juvenile arthritis and anxiety. 
  • Chronically Delores by May Van Wagenen (2025 Schneider Family Book Award winner). Delores, who has  interstitial cystitis, launches a mutually beneficial partnership with new autistic friend Terpsichore, from which both teens hope to benefit.
  • Light Enough to Float by Lauren Seal (2025 Schneider Family Book Award honor book). Painfully real depiction of living with anorexia, told in verse.
  • Bitsy Bat, School Star by Kaz Windness. Described as “from an autistic perspective” by the autistic author, Bitsy finds school way too stimulating for comfort but nevertheless finds a way to shine.
  • Next Level: A Hymn in Gratitude for Neurodiversity written by Samara Cole Doyon and illustrated by Kaylani Juanita. A joyful book that invites readers to “level up” and witness our shared humanity.

Published in other years but read by me in 2024:


  • The five book covers mentioned in the text on a dark purple background
    GREAT disability rep! GREAT reads!
    Good Different by Meg Eden Kuyatt  (2024 Schneider Family Book Award honor book). A novel-in-verse about a neurodivergent girl who comes to understand and celebrate her differences. (2023)
  • No Matter the Distance by Cindy Baldwin. A novel-in-verse about a kid with cystic fibrosis who forms a special bond with an ill dolphin. (2023)
  • Aniana del Mar Jumps In by Jasminne Mendez (2024 Pura Belpré Honor book), a novel-in-verse about a 12-year-old Dominican American swimmer who is diagnosed with Juvenile Arthritis. (2023)
  • How it Feels to Float by Helena Fox. One of the most illuminating and empathetic depictions of schizophrenia I’ve ever encountered. (2019)
  • Lover Birds by Leanne Egan—a sapphic enemies-to-lovers story set in Liverpool featuring a powerful portrayal of ADHD. (2025)

Note: You may have noticed a lot of novels-in-verse in the list above. Not only do I love the form, but my current work-in-progress is a verse novel. 


Wish me luck—and happy reading!


Karol Ruth Silverstein's author photo. She's a white woman with wavy brown hair, wearing blue glasses and a lavender top emblazoned with the word "PROUD." The "O" on proud is a dynamic wheelchair icon.


KAROL RUTH SILVERSTEIN is an award-winning children's book author and disability activist. She lives in West Hollywood, CA with two impossibly fluffy cats.